
Today my sister asked me the question that I did not want to hear. The question that runs through all of our minds over and over again. The question we rarely speak out loud because of the complete and utter desperation that any answer would bring to us...The question is "What is wrong with our family" or sometimes the question is "why us", or sometimes we can phrase the same question differently and say "is their something wrong with us".
All mothers worry about their children's health, but we worry more. We don't just worry about our children but, we worry about our sisters children. We hold our breath. We watch closely for milestones. Who is pointing, who is not, when do they learn to walk, do our little children show signs of aggression, do they play with others, can they sit on a chair or write their name. The list seems to go on and on, we watch and we worry.
My oldest is the first child in our family living in the state. My sisters loved him dearly and spoiled him in complete and utter love. They watched as I worried about his development. Things other children seemed to do easily were such a struggle for him. They watched us bounce from one diagnosis to another. Aspergers, ADHD, pdd-nos, back to ADHD, and then we end without a diagnosis, just a child with a list of symptoms and a mother looking for help.
Soon my sisters began to add to their families. Children they love as much as any mother, children they would die to protect. Children they would walk to the end of the earth and back again for. Children they held in their arms and sing to in the still of the night.
Children who showed signs of developmental delays.
We searched for answers as Brandon received the same diagnosis as Dylan. We watched as he struggled in ways that we had not even began to imagine. Each day is exhausting each day is a challenge for him. We are overly protective of him as a part of our family...this child who will never grow up.
We followed Mat, he can't have ADHD, he is so different from Dylan, but in the end he does....and so the story goes we watch, we hope, we pray.....and then we fight for our children. We fight for diagnosis, and help, and services, and understanding. Most of the days we just do...we don't think of the reasons, we don't ask the questions. We just do, we do what it takes, we do what they need. We get them up and send them to school. We cry when they fall down and get them back up again.
We watched as Rachel did not learn to sit up, or walk, or speak, our beautiful little girl, where are her words? With five sisters and two sisters in laws all married with in a short amount of time, the babies came fast. Our worries seemed to add as fast as the babies, and so did the unspeakable questions.
I wish I could say I had an answer to the questions, the ones we only dare to whisper. I wish I could understand the biological reasons why, but I can't, I just have the tiny voice in the back of my mind telling me to move forward. The voice tells me God knows what he has asked of me and my sisters, it tells me we are stronger than we think. We love more than most. We have each other and our children have us. The tiny voice tells me the answers will never come, stop asking and keep doing. A family bond held together, 5 sisters who need each other, 5 sisters stronger than you think.
P.S. Do you think we look alike. We have been asked mutiple times if we are triplets. There are five of us so we never know who they are leaving out. We took this picture to try to figure it out. No luck, we decided we don't loook alike at all.